SMAiLEE~SMA患者さんとご家族の動画記録~

100+
Downloads
Content rating
Everyone
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About this app

SMAiLEE (Smiley) is an app to support children and families who are being treated for spinal muscular atrophy (SMA).
In the treatment of SMA (Spinal Muscular Atrophy), it is important to inform medical personnel such as doctors, nurses, and physical therapists about the child's usual condition.
SMAiLEE supports medical care by recording your child's movements and appearance at home and making it easier to communicate to medical personnel.

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Videos shot and edited with SMAiLEE are stored and protected on an online video server managed by Welby Co., Ltd.
Welby Co., Ltd. complies with laws and regulations concerning the protection of personal information, and handles personal information in its possession appropriately.
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[What you can do with SMAiLEE 1] You can share videos of your natural exercise at home with your doctor.
Depending on your physical condition and mood at the time of treatment, it may be difficult to tell your child's regular exercise routine to the doctor in charge. Smiley helps you share your child's best performance by recording videos of your child at home.
In addition, if you register a dedicated doctor's link code in the app, you can view the video from a dedicated screen that the attending doctor can access. *You can cancel the link at any time from the app.

[What you can do with SMAiLEE 2] You can record motor functions that match your child's condition.
By registering your child's exercise status in the checklist, recommended reference exercise candidates will be displayed. Try to imitate the movement of the reference exercise animation and shoot a video regularly.
If you want to shoot an exercise that is not provided in the app, you can create an original category and shoot.

[What you can do with SMAiLEE 3] You can practice your vocalization and finger movements in a fun way with a measurement game.
"Fuwa Fuwa Balloon Bear Challenge" allows you to record the length and volume of your vocalizations during the game as part of vocal practice. In addition, you can practice moving your fingers along the picture displayed on the screen in "Connect and discover! Connect the dots challenge". The measurement results of the vocalization function and finger movement distance during the actual game can be shared with medical personnel. Have fun and practice with your child through games.

[What you can do with SMAiLEE 4] You can look back on the recorded contents and examination dates in chronological order.
On the timeline screen, you can check when and what your child was doing in chronological order for each reference exercise. You can also register the hospital visit date and display it together.
You can look back on the results of the measurement game in chronological order from the result list screen.

[What you can do with SMAiLEE 5]
The “Smiley Member-Only Dial”, which can be used by downloading the app, investigates how to use the app and the social welfare system in your area to support your family.
Even non-app members can consult and inquire about SMA from the SMA information dial below.

SMA Information Dial: 0120-095-655
Reception hours: Monday-Friday 10:00-17:30 (excluding year-end and New Year holidays)

【I recommend this hotel】
・Has a child with SMA (Spinal Muscular Atrophy)
・I don't know what kind of symptoms to tell the medical staff
・I can't tell medical staff about my daily symptoms, I'm having trouble telling them, I want to tell them correctly

[Target area]
This application is intended for use by residents of Japan.

[Providing company]
Welby Co., Ltd.

[Supervision]
National Center for Psychiatry and Neurology
Director of Translational Medical Center
Professor Hirofumi Komaki

[Inquiries about this service]
SMA Information Dial: 0120-095-655
Reception hours: Monday-Friday 10:00-17:30 (excluding year-end and New Year holidays)
For app members, there is a "smiley member exclusive dial" separately from the above contact information.
We will support your family with inquiries on how to use the app and research agency services for the social security system in your area.
Updated on
Feb 20, 2023

Data safety

Safety starts with understanding how developers collect and share your data. Data privacy and security practices may vary based on your use, region, and age. The developer provided this information and may update it over time.
This app may share these data types with third parties
Photos and videos
This app may collect these data types
Personal info, Health and fitness and 4 others
Data is encrypted in transit
You can request that data be deleted

What's new

軽微な不具合の修正を行いました。